For parents of children and young people with kidney disease
Give the class teacher the information he or she needs to give your child appropriate encouragement and challenge.
Ask the teacher to facilitate and support your child’s integration into the classroom.
-Give the teachers the phone number of the dialysis, the doctor and of you.
Your child has a legal right to compensation for disadvantages (§ 126, Social Security Code IX).
Your child needs challenges and successes on which it can grow and gain self-confidence without being overwhelmed.
-Help your child with his or her time management. In addition to homework and therapy, there must always be time for rest and play.
Your child has reduced attention due to the disease. Pay attention to generous breaks.
-Talk to other affected parents about their experience and solutions. -Much of this can certainly be adopted.
Maintain regular contact with the teachers so that you can take “familiar, short routes”.
-Contact the psychosocial services of children’s centres or schools if you are unsure or if your child is particularly withdrawn or reacts particularly aggressively.
-Join a self-help association for parents and children, it offers help and is well acquainted with the stresses and strains of children and young people.
Children with kidney disease have disadvantages due to the disease. They can consult with teachers about so-called disadvantage compensation (for general education schools).
-The duration of the written work can be shortened or provided with short breaks for recovery.
-Discuss the amount of homework with the teachers. Here you can achieve a reduction.
-Explain to the teacher that the child is under great psychological and physical strain during the therapies.
-School sport is healthy for all children. Chronically ill children and adolescents should also be able to participate in school sports.
-For an assessment, you should regularly introduce your child to a youth sports physician or nephrologist who can draw up an individual profile for your child at the beginning of the school year. The child’s performance could be evaluated as described in the regulations on compensation for disadvantages.
For teachers of children and young people with kidney disease
-There is no cure for chronic renal insufficiency. Sooner or later it leads to dialysis or transplantation.
-In chronically ill children, unforeseen emergencies can occur. Have your parents give you an emergency number (treating nephrologist/family doctor).
-Ask the parents and the child/adolescent to be allowed to inform the college about the illness.
-The performance of all children and adolescents with kidney insufficiency is reduced and their resilience is lowered. They tire faster and can concentrate less long than their classmates of the same age. There is therefore a claim to compensation for disadvantages (§ 126, Social Security Code IX).
Physical education is desirable and often possible with certain restrictions.
-Ask the parents to introduce the child to a child and youth sports physician. This will give them clear information about their performance. Sport on therapy days is less favourable than on therapy-free days. If the child is on dialysis, the vascular access points must be known.
-Children and adolescents must follow a certain, strict diet and pay attention to the amount they drink (very little in the case of dialysis, a lot after transplantation). A number of medications must also be taken. Please support the child if he/she has to take drinks or medication during the lessons.
-If the parents and the child agree, the classmates should be informed about the disease in a factual way.
-Participation in excursions is possible and important for the child and its social integration. Show the child that you are happy to take him or her along. n Sometimes the children miss lessons, as they have to go to dialysis for a few hours 3 times a week or more often to the transplant aftercare. They have much less free time and contact opportunities than other pupils. Maybe you can help the child a little bit with “networking”.
-If the child is hospitalized for a longer period of time, the parents can apply for additional or home schooling for the child. The school authority is responsible here